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Posted by Steve
Jim,
Do you think the government is ever going to give money to a group whose ailment is not taken seriously? The CFS people acted with the government. They actually invited them to attend symposiums. William Shatner did some work for the ATA. But in the absence of it being taken seriously, do you think any public monies will really come to tinnitus research?
If Chronic Fatigue People didn't fight to be recognized as a genuine ailment, they would be still being called malingerers. I'm told the European community doesn't even call CFS that. They feel it is a neurological problem possibly related to CFS flow. That is why some have great success with decompression surgery. That came from research.
Here is the link from a SS Ruling which shows just how difficult it is to document CFS. But that at least gives the claimant a legal standing and a Judge the law to go by. Anyone comment that tinnitus cannot be disabling deserves a double dose themselves to convince them it can.
http://www.ssa.gov/OP_Home/rulings/di/01/SSR99-02-di-01.html
Regarding the ATA and information - When asked about "Topics you want to see addressed in Tinnitus Today" 31% responded YES to Social Security/Veteran's Benefits.
Is there any commitee that is working on providing information on the lengthy and maze like SS process? 31% is a lot of people asking for it. It is not an outrageous request. In fact, the leadership of the ATA asked the question. If they didn't, then 31% of people doing a write-in
is even more evidence of people wanting to know. You do realize that people with tinnitus often suffer with far greater symptoms from other problems. I've heard a statistic that 90% of people approved at a hearing before a judge for SS are approved on a combination of impairments; not a single impairment. I don't have my written decision yet, but I imagine a number of items will be referenced. But sometimes, they aren't in the specific.
Steve
