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Posted by Marnus van Wyk
Hey hey
I've being reading everything here for the past couple of
hours now, and i must thank everybody for giving some
advice and sharing their thoughts.
I came down with T and then started losing some lower
frequencies, up to the point where i could not hear people
talking without looking directly at them. Doctor put me
on pulmison, 60mg, daily, nearly halving every week.
Got much better, some residual tinnitus but manageable.
After i dropped to 40mg, second week, second day, i woke up as deaf as it can get.. and it happened overnight. This is only in my one ear and wouldn't have being a big problem, but, i've already lost my other ear. My mother told me
she noticed i was deaf in my other ear when i was three.
I was jumped to 80mg a day for five days and things got
better, then i started getting very sick, and ended up in
hospital, doing every blood test in existence. Also received
calcium as my specialist apparently failed to remember to
give it to me (pulmison flushes out calcium?). I got much better. Only problem left is that my back and shoulders are arched, and my bones are sore, but should get better
I've being on 60/40/30mg of pulmison for the past weeks and i'm extremely happy i can hear again, but this is the second day of 30mg pulmison and the tinnitus is getting louder. The last time the tinnitus got louder i also started losing my hearing.
Also, i'm on a increase weekly cycle of metatrexate since i started reducing the pulmison. I'm now on 37.5mg per week. Which is very low, i imagine, but still need to go for liver tests every week. I feel uneasy about the ten warning labels on the bottle i'm getting it in too :).
I'm very confident about my doctor, he really is the best here in south africa, always telling me about other specialists he's talking to and discussing my problem with. I think the metatrexate will keep my hearing okay after i stop the pulmison but i have this uneasy feeling
the T is gonna keep on going. I'm very happy to see lists and lists of ideas and treatments here i could try but i'm worried about mixing it with my current medication. I know "natural" remedies do help sometimes but i've also seen babies with their ears bleeding after taking them too, so always be careful.
I've now had T for 8 weeks, constant. Louder/softer as the medication is changed, but i'm getting worried that the medication is going to kill me sooner.
I know this is a T board, and i'll post some solutions i've experienced, and what worked for me (i had a bad case of T about 2 years ago).
Anybody with a similar history? "Safer" medication specificly for tinnitus i can try? (btw, i'm 23)
Thanks a bunch, and good luck to everybody.
